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The Lung Transplantation Handbook (Second Edition): A Guide For Patients

by Karen A. Couture

270 pages; black coil; catalogue #00-0169; ISBN 1-55212-504-1; US$29.98, C$44.98, EUR29.30, £20.30

The Lung Transplantation Handbook (Second Edition), originally published under the title Things You Should Know About Lung Transplantation: Before, During and After has now been updated and expanded in this, the second edition.

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about the book      about the author      Table of Contents      catalogue info

About the Book This comprehensive, 270-page book, written by lung transplant recipient Karen A. Couture, covers the entire transplantation process from beginning to end for both lung and heart-lung transplants. This book introduces the reader, in easy-to-understand language, to the complex process of getting on the transplant waiting list and how the list works; preparing for surgery and the surgery itself; financing the operation and the recovery afterward; and the complications of rejection and the medications. It also includes precautions a transplant recipient should take in order to live a long and healthy life; returning to work or school; future trends in transplantation; and writing to your donor family. Scattered throughout this book are excerpts from the stories of pre-transplant patients, recipients and caregivers, to offer the unique perspective only a person going through the process could furnish. This edition also provides a wealth of information in an extensive, up-to-date resource section; glossary; appendix of all lung transplant centers, including waiting time and the number of transplants performed; bibliography; and worksheets. This publication is a must-read for transplant candidates, recipients, family members, as well as social workers, and nurse transplant coordinators. Click here to read about Joanne Schum's TAKING FLIGHT: INSPIRATIONAL STORIES IN LUNG TRANSPLANTATION Shirley Jewett's I CALL MY NEW LUNG TINA: INSPIRATION FROM A TRANSPLANT SURVIVOR

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About the Author Karen A. Couture is a graduate of the University of Massachusetts and holds a Bachelor of Fine Arts degree. Over the past 20 years, Ms. Couture has worked in the visual arts and publishing fields. She was diagnosed with a rare lung disease, lymphangioleiomyomatosis, for which she received a double-lung transplant at Shands Hospital at the University of Florida on January 21, 1996. Currently, she is a licensed massage therapist and lives in Davie, Florida.

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Table of Contents

PART ONE: Before Transplantation

HISTORICAL PERSPECTIVE:
   The History of Lung Transplantation
   Functional Outcomes
   Survival Rates
THE ORGAN DONOR SHORTAGE:
   Expanding the Donor Pool
HOW THE LUNGS WORK:
   Understanding Your Pulmonary Function Test
   Understanding Your Arterial Blood Gas Analysis
   Understanding Your Pulse Oximetry
   Exercise Testing
DO YOU NEED A LUNG TRANSPLANT?
   What are the Surgical Options?
   Common Indications for Single-Lung Transplantation
   Common Indications for Bilateral-Lung Transplantation
   Common Indications for Heart-Lung Transplantation
   Common Indications for Living-Lobar Lung Donor Transplantation
   Common Indications for Pediatric Lung Transplantation
   Common Indications for Lung Retransplantation
LOOKING FOR A TRANSPLANT CENTER:
   Sample Questions a Patient Might Ask
THE EVALUATION:
   Initial Visit
   Formal Evaluation
   Living-Lobar Lung Donor Transplantation Evaluation
   Pediatric Transplantation Evaluation
   Retransplantation Evaluation   Inclusion Criteria
   Relative Contraindications
   Absolute Contraindications
   Medical Review Board
THE WAITING PERIOD:
   The Waiting List
   Position on the List
   Medical Urgency
   How Long is the Waiting Period?
   Multiple Listing
   Transferring Waiting Time
   Inactive vs. Active Status
PRE-TRANSPLANT PREPARATIONS:
   Beepers
   Medical Appointments
   Dental Care
   Vaccinations
   Transfused Blood
   Getting Your Legal Affairs in Order
   Nutrition
   Exercise
   Travel Preparations
   Flying with Oxygen
   Handicapped Parking Permits
   Housing
   What to Bring to the Hospital
FINANCING TRANSPLANTATION:
   Health Insurance
   Federal Health Insurance Plans
   Other Types of Health Insurance
   Other Sources of Funding
KEEPING YOUR SANITY:
   Support and Counseling
   Relaxation Techniques
   Coping Skills
   Your Support Network

PART TWO: During Transplantation

WHAT TO EXPECT THE DAY OF THE TRANSPLANT:
    Dry Runs
WHERE DO THE DONORS COME FROM?
    Defining Brain Death
    Organ Recovery
    The Role of the Organ Procurement Organization
    Thoracic Organ Procurement
THE TRANSPLANT PROCEDURE:
    Operative Procedure for Single-Lung Transplantation
    Operative Procedure for Bilateral-Lung Transplantation
    Operative Procedure for Heart-Lung Transplantation
    Operative Procedure for Living-Lobar Lung Donor Transplantation
    Operative Procedure for Retransplantation
WHAT TO EXPECT DURING YOUR HOSPITAL STAY:
    When You Wake Up
    After Surgery
    Visitors
    Diet
    Exercise
    Transferring to the Floor
    Doctors and Nurses
    Pulmonary Rehabilitation
    Medications
COMPLICATIONS OF LUNG TRANSPLANTATION:
    Complications of the Operation
COMPLICATIONS OF REJECTION:
    Nonspecific and Specific Defenses
    The Immune System
    T Cells
    B Cells
    Organ Transplantation and the Immune System
    Hyperacute Rejection
    Acute Rejection
    How Can You Tell if You Have Acute Rejection?
    Diagnosing Acute Lung Rejection
    Lung Biopsy
    Stages of Rejection
    Treating Acute Rejection
    Recurrent Rejection
    Diagnosing and Treating Heart Rejection
    Chronic Rejection
    Diagnosing Chronic Rejection
    Treating Chronic Rejection
    Rescue Therapy
    Preventing Rejection
COMPLICATIONS OF IMMUNOSUPPRESSION:
    How Do You Know You Have an Infection?
    Bacterial Infections
    Viral Infections
    Fungal Infections
    Childhood Diseases
    Infection Prevention
COMPLICATIONS OF THE MEDICATIONS:
    Common Complications
    Rare Complications

PART THREE: After Transplantation

GOING HOME:
    Restrictions and Instructions after Discharge
    Special Restrictions for Children
    Your Daily Journal
    Incision Care
    Notify Your Coordinator If Any of The Following Occurs
LIFE AFTER TRANSPLANTATION:
    Clinic Visits
    Routine Health Maintenance
    Lab Work
MEDICATIONS AFTER TRANSPLANTATION:
    Improve Your Medication Compliance
    Induction Therapy
    Immunosuppressive Agents
    Agents Used For Recurrent or Resistant Rejection
    Prophylactic Medications
    Gastrointestinal Drugs
    Diuretic Drugs
    Blood Pressure Lowering Medications
    Antianxiety Medications
    Antidepressive Medications
    Drug Interaction Dangers
    Alcohol and Transplant Medications
    Buying Prescription Drugs
TAKE PRECAUTIONS:     When Eating
    With Alcoholic Beverages
    With Grapefruit Juice and Cyclosporine or Prograf
    With Unpasteurized Juices, Milk and Milk Products
    With Drinking Water
    When Swimming
    With Smoking
    With Pets
    When Gardening
    When Traveling
    With Vaccinations
    With Antibiotics
    With Over-the-Counter Medications
PERSONAL CARE:
    Skin Care
    Hair Care
    Eye Care
    Dental Care
    Humidifiers
HEALTHY EATING FOR TRANSPLANT RECIPIENTS:
    Adequate Nutrition
    General Guidelines for a Healthy Diet
    Stomach Upset
    Weight Control
    Preventing High Blood Pressure and Fluid Retention
    Preventing High Cholesterol
    Preventing High Blood Sugar
    Preventing Osteoporosis
    Lowering Your Potassium Levels
    Food Safety
VITAMINS AND MINERALS:
ALTERNATIVE OR COMPLIMENTARY MEDICINE:
    Acupuncture
    Aromatherapy
    Biofeedback
    Chiropractic Medicine
    Herbal Medicine
    Hypnotherapy
    Homeopathy
    Massage
    Naturopathy
EXERCISE:
    Endurance Exercises
    Flexibility Exercises
    Strengthening Exercises
MENTAL HEALTH ISSUES:
    Anxiety/Panic Disorders
    Depression
SEXUALITY AND RELATIONSHIPS:
    Safe Sex
    Pregnancy
    Relationships
EMPLOYMENT:
    Going Back to School
    Getting Back to Work
    Employment and its Effect on Social Security/Medicare/Medicaid
    The Americans with Disabilities Act
    Vocational Rehabilitation
DONOR ISSUES:
    Writing to Your Donor Family
FUTURE TRENDS:
    Experimental Drugs
    New Technologies for Predicting/Diagnosing/Preventing Rejection
    Emerging Technologies
SUMMARY:

GLOSSARY:

RESOURCES:

    Organ Donation & Transplantation Organizations
    Fundraising and Charitable Organizations
    Health Insurance Information
    Prescription Drug Information
     Mail Order Pharmacies and Drug Assistance Programs
    Support Group Information
    Donor Family Resources
    Pediatric Resources
    Professional Organizations
    Government Agencies
    Related Organizations
    Periodicals
    Videos
    Books on Transplantation
    Books About Personal Experiences
    Books for Families with Children
    Miscellaneous Books
    Organ Donor Awareness Materials
    Online Mailing Lists
    Weekly Transplant Chats Online

APPENDIX A:

    Lung and Heart-Lung Transplant Centers by State
    Transplant Centers Chart

APPENDIX B:

    Median Waiting Time to Lung Transplant by Region

WORKSHEETS:

    Transplant Center Worksheet
    Exercise Log
    Health Insurance Worksheet
    Personal Health Information
    Daily Log
    Weight Lifting Log

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Catalogue Information

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